Huntington's Disease: Horrible illness that needs to stop YESTERDAY

I hate overheating HD symptoms AC on full blast as I sit unddder it
Before I use to due thing s in summer
In HS play tennis hockey bike in all summer horrstets days
Go to beach a lot to then . hike since 2013 in all heat and lots different Catskills and shawgunk mtn now I just sit in apartment life definitely glad I did that stuff but still how fast it goes away what I due in warm summer months few years ago now nothing for half year I jhut glad no kids for me to pass it down to
 
ScottySkis said:
I hate overheating HD symptoms AC on full blast as I sit unddder it
Before I use to due thing s in summer
In HS play tennis hockey bike in all summer horrstets days
Go to beach a lot to then . hike since 2013 in all heat and lots different Catskills and shawgunk mtn now I just sit in apartment life definitely glad I did that stuff but still how fast it goes away what I due in warm summer months few years ago now nothing for half year I jhut glad no kids for me to pass it down to
Click to expand...
Hang in there Scotty. Stay cool!
 
aunt B and Charlie got me
Arctic Air
Works well with AC on full blast and I put ice in it aim at AC
it very much help me be comfortable great investment
 

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New medicine for Huntington D being accepted for patients to use according to this link below
I plan on ask about it at my NYC appointment on Fri:
KINECT-HD2 is an open-label study of valbenazine for chorea in #HuntingtonsDisease that is currently recruiting participants in the USA & Canada.

Visit HDSA’s HD Trialfinder (hdtrialfinder.org) or the study website: http://KINECT-HD2.org.

#LetsTalkAboutHD #HDSAFamily
 
Tomorrow Huntington disease appointment in NYC at Columbia hospital Huntington clinic use to once a year but since covid they had delayed it about year in half.
I going to ask them about trails and new medicine and getting on them
My aunt is going take me like every year
I looking forward to this
Asking also about medicine that might keep me cooler
 
Only 72 high temperatures today very low humidity
I over hot now with AC on full blast
When I walked this late morning it was 66 degrees I stopped few times after eating five guys French fries in McDonald's with their burger
They are next to other here in Middletown I went home by taxi and still hot the temperature is 61 degrees now and humidity of 45 %
Yet in apartment with AC on for 3 hours now and I hot due to my overheating body from Huntington which I know its my hate that part the most of any symptoms
 
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