Huntington's Disease: Horrible illness that needs to stop YESTERDAY

ScottySkis said:
BREAKING NEWS
Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of #HuntingtonsDisease

READ FULL STORY: https://www.businesswire.com/news/home/20210915005156/en/

#LetsTalkAboutHD #HDSAFamily
Click to expand...
It’s in the class of neuroactive steroids. (NAS).
Good luck Scotty. ?

Breakthroughs in neuroactive steroid drug discovery

Free essays, homework help, flashcards, research papers, book reports, term papers, history, science, politics
studylib.net studylib.net
 
"A new mechanism that stops the progression of Huntington’s disease in cells has been identified by scientists at the University of Cambridge and UCL, as part of their research groups at the UK Dementia Research Institute. - Huntington's Disease News "

www.newshd.net

A new mechanism that stops the progression of Huntington’s disease in cells has been identified by scientists at the University of Cambridge and UCL, as part of their research groups at the UK Dementia Research Institute. - Huntington's Disease News

Researchers say the breakthrough study, published in Cell Reports, could lead to much needed therapies for the rare genetic disease, which is currently incurable. Huntington’s disease is a progressive and devastating neurodegenerative disorder that affects about 1 in 10,000 people in the UK. The...
www.newshd.net www.newshd.net
 
Huntington disease online talk with others with HD online next month:
"""Register today for our Family Day Symposium at HSG 2021: UNMASKING HD on November 6, 2021. It's free to attend, and highly encouraged for HD patients, families, caregivers, and anyone else! But you need to register in advance.

Hear from some of the most well-known researchers, advocates, contributors, and legends in the HD community, including Martha Nance (Hennepin CoE), Victor Sung (UAB), Lauren Byrne (JOIN-HD from HDYO), Jim Gusella (Mass General), and Sam Frank (Beth Israel).

--> https://huntingtonstudygroup.org/about/our-annual-meeting/hsg-2021/#FamilyDay
"""
 
Huntington D info, below.
For donations and cures to stop it by research below info from today Friday Facebook HD post:

""We are participating in the action warm heart in the Netherlands.
With this contest we can win a sum of money of up to 10,000 euros and we come a step closer to curing / stopping this terrible disease. So help us and click on the link below and vote for Campaign Team Huntington. Sharing is much appreciated"""

https://www.facebook.com/permalink.php?story_fbid=4342381752516047&id=100002327949479
 
Huntington D: website about how it effect patients:
""To sum up, our results show that cognitive networks in HD are particularly affected, even in the premotor stages of the disease. These disruptions follow well-known patterns in neurodegenerative disease, with decreases in the intrinsic connectivity of the networks and the loss of graph-theoretical properties. Furthermore, a dynamic approach uncovers network interactions unapparent in static analyses of FC that extend into the premanifest stage. Further studies will be needed to replicate these findings and link them to the diverse phenotypical and neuropsychological aspects of HD."
movementdisorders.onlinelibrary.wiley.com

Structure and Dynamics of Large‐Scale Cognitive Networks in Huntington's Disease

Summary of the imaging analysis methodology and main results. Metrics of static functional connectivity were acquired according to the two parcellation schemes (whole brain and cognitive networks res...
movementdisorders.onlinelibrary.wiley.com movementdisorders.onlinelibrary.wiley.com
 
My Huntington disease
Reasons for ?? government to please recognized for all us Congress and Senate immediately attention below:
"Dear Kirsten Gillibrand, Congressman Bill Pascrell, Jr., Adam Kinzinger & U.S. Senator Bill Cassidy,

We need you to help the #HuntingtonsDisease community pass #HR2050 #S868. Speak to your colleagues, and act on your promises to make the #HDParityAct your number one policy priority so we can #PassTheHDParityAct.

#LetsTalkAboutHD #HDSAFamily
""
 
Help please by getting word out on Huntington D by:
"PLEASE SHARE!
An Op-Ed by Kirsten Gillibrand Adam Kinzinger Congressman Bill Pascrell, Jr. U.S. Senator Bill Cassidy discussing the #HDParityAct.
To learn more visit https://www.votervoice.net/HDSA/campaigns/85418/respond

Roll Call
www.rollcall.com

Congress must pass the Huntington’s Disease Disability Insurance Access Act - Roll Call

OPINION — Our legislation would remove Medicare and SSDI waiting periods for those who qualify for disability with Huntington’s disease.
www.rollcall.com www.rollcall.com

Senator Ron Wyden House Speaker Nancy Pelosi Senator Chuck Schumer Congressman Richard Neal #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #passthehdparityact"""
 
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