Huntington's Disease: Horrible illness that needs to stop YESTERDAY

I hope someone real nice comes along for you. Someone who can cook like Nakisha. Looks like the heatwave is over for now. I hope you can get out and enjoy some cooler weather.
 
From Huntington Facebook page another patient that describes his life effect by HD I feel the same:
"I'm a tough individual! I worked hard and enjoyed my life! But this disease got the best of me! It is not something you can ignore! The longer you ignore it the stronger it becomes! It starts slowly with anxiety and depression! Then the mood swings and anger issues! You slowly shut the world people out and you don't realize it's happening! You're no longer happy about anything! You try to push through but the harder you push the harder you fall down! All you want to do is be normal again and be able to go and do things! But you have little to no energy! You want to shut out the world and crawl into a cave! You start losing your balance you twitch sll the time its very depressing!"""
 
""A panel of experts has developed guidelines around the ethics of gene editing. The New York Times reports on the committee’s work, which focuses on safety, equity, and burden on patients. HD was considered as an example of a disease where complex ethical issues might arise.""
www.nytimes.com

W.H.O. Experts Seek Limits on Human Gene-Editing Experiments (Published 2021)

The panel also called on countries to ensure that beneficial forms of genetic alteration be shared equitably.
www.nytimes.com www.nytimes.com
Good read about HD from my Facebook HD page
#LetsTalkAboutHD #HDSAFamily #HuntingtonsDisease
 
I wish any political parties would care about health issues not just pretend to:

#"""HDSAFamily thanks Rep. Jake Auchincloss for cosponsoring #HR2050 the #HDParityAct. #HuntingtonsDisease families can't wait #2years to access crucial #Medicare benefits through #SSDI. Let's #PassTheHDParityAct in 2021!""
 
If anyone wants to join on Facebook page I find most information from others on this awesome page

Log into Facebook

Log into Facebook to start sharing and connecting with your friends, family, and people you know.
www.facebook.com www.facebook.com
 
HDSA Applauds Energy and Commerce Committee for Highlighting Burden of #HuntingtonsDisease, Reiterates Call to Pass Bipartisan #HDParityAct

Washington, DC (July 29, 2021) – The Huntington’s Disease Society of America (HDSA) applauds the House Energy and Commerce Subcommittee on Health for holding a vitally important hearing today that will spotlight Huntington’s disease (HD) — a rare, inherited, neurodegenerative disease whose patients are uniquely disenfranchised by the current health care system.

READ FULL PRESS RELEASE: https://hdsa.org/news/hdsa-applauds...erates-call-to-pass-bipartisan-hd-parity-act/

#LetsTalkAboutHD #HDSAFamily
 
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