Huntington's Disease: Horrible illness that needs to stop YESTERDAY

[Harvey]

Yes absolutely exactly perfect said

Help me with this list Scotty.

Plattekill
Vermont(?)
Colorado(?)
Alta
Snowbird

 

[Scottyskiied]

Help me with this list Scotty.

Plattekill
Vermont(?)
Colorado(?)
Alta
Snowbird

Hunter bellflat
Platty the best hill in the Catskills
Stowe , K
Sugar bush. Mountain snow
Smuggs, wildcat.
Mtn Saint Anne
Sugar loaf, Sunday river
White ice. Gore
Mtn creek action park
Steamboat
Vail
Alta
Alta
Alta
Snow bird
Snow bird
Snow bird
Snow bas6in
2 other in slc that gets lots of snow
Platty the best for me because of of beautiful experiences and friends and nemories I know I be enjoy powder day their in heaven weather that is today or fre decade s from today

 

[Harvey]

Hunter bellflat
Platty the best hill in the Catskills
Stowe , K
Sugar bush. Mountain snow
Smuggs, wildcat.
Mtn Saint Anne
Sugar loaf, Sunday river
White ice. Gore
Mtn creek action park
Steamboat
Vail
Alta
Alta
Alta
Snow bird
Snow bird
Snow bird
Snow bas6in
2 other in slc that gets lots of snow
Platty the best for me because of of beautiful experiences and friends and nemories I know I be enjoy powder day their in heaven weather that is today or fre decade s from today

I think we are going to need a big stone.

Does anyone have any experience with this? PM me.

 

[Deez]

I don't know anyone on this forum and i don't post all that much.
Whatever the "best" means in your situation - I wish you the best.
May your family and friends bring you solace in your time of need.

 

[Scottyskiied]

Benefit Concert performer: Sarah Dudinetz
https://www.sarahdudinetz.com/


Get your tickets/dinner tickets BEFORE the ealy-bird pricing ENDS!
https://www.championsforhd.org/benefitconcert


#HDCantTameMe ⁠ #BreStrong #championsforhdbenefitconcert⁠ #championsforhd #hdawareness #huntingtonsdisease #juvenileHD #curehd #curejhd #juvenilehuntingtonsdisease #raredisease⁠ #jhdwarrior #jhdawareness #juvenilehdwarrior #hdwarrior #hdchampion #jhdchampion

 

[Harvey]

We are trying to do something simple to make Scotty smile. If you want to help DM me.

 

[Scottyskiied]

Tune in tomorrow at 4 PM ET/1 PM PT for our Hereditary Disease Foundation Young Investigator's Series! Dr. Killian Hett from Vanderbilt University Medical Center joins me to talk about using MRI technology to research HD. REALLY interesting stuff!

 

[Scottyskiied]

HDSA's TCS New York City Marathon Team has now raised more than $123,000 to support the fight against #HuntingtonsDisease! We shared an amazing afternoon with some of the team! Good luck to all the runners and THANK YOU!!

Show this amazing team some love by liking this post and remember to cheer them on this Sunday!

Learn more about the team at https://hdsa.org/get-involved/nyc-marathon-team/

#LetsTalkAboutHD #HDSAFamily #NYCMarathon #tcsmarathon

 

[Scottyskiied]

HD donation

Today is the day! Help us reach our goal of $20,000!

Donate: https://www.championsforhd.org/donate

Text to give!! You can donate from anywhere by texting "GIVE“ to (855) 795-2317

Livestream the show:

Virtual (Live Stream & Auction) | Championsforhd

www.championsforhd.org

#HDCantTameMe ⁠ #BreStrong #championsforhdbenefitconcert⁠ #championsforhd #hdawareness #huntingtonsdisease #juvenileHD #curehd #curejhd #juvenilehuntingtonsdisease #raredisease⁠ #jhdwarrior #jhdawareness #juvenilehdwarrior #hdwarrior #hdchampion #jhdchampion

 

[Scottyskiied]

She won!!! Congratulations to outstanding graduate student Jj Waldo for receiving the American Society of Human Genetics Trainee Research Excellence award for her work in #huntingtonsdisease! “Durable #HTT silencing using non-evolved #dCas9 #epigenome editors in patient-derived #neuronal cells.”
So proud of her and happy that she got this recognition for her hard work!
#ASHG2023 #ASHG23 #genetherapy

Thank you @help4HD and all of those who have helped support this excellent work. Dr. Kyle Fink and I have an NIH grant together to deliver gene therapy for Huntington’s disease and JHD, but JJ’s work has evolved past that. The donations support amazing new ideas like this!