Huntington's Disease: Horrible illness that needs to stop YESTERDAY

[ScottySkis]

Huntington D potential medicine
"Preclinical CRISPR gene editing study including Als and Huntington's below.

"A CRISPR-based gene editing system could be used to reduce the activity of genes associated with amyotrophic lateral sclerosis (ALS) and Huntington’s disease, a new study shows....In other experiments, the researchers showed that the same system could be applied to target the HTT gene mutated in Huntington’s disease""

Gene Activity Associated With ALS Could Be Reduced With CRISPR Tech

Scientists used a CRISPR-based gene editing system that uses an enzyme to target RNA instead of DNA, reducing gene activity in a mouse model.

alsnewstoday.com

 

[ScottySkis]

""The experimental therapy pepinemab can aid cognition in people with early Huntington’s disease who showed signs of cognitive impairment when they started treatment, new analyses from the Phase 2 SIGNAL clinical trial indicate

#AAN2022 – Pepinemab Appears to Help Patients With Cognitive Issues

The experimental therapy pepinemab can aid cognition in people with early Huntington’s disease who showed signs of cognitive impairment when they started treatment, new analyses from the Phase 2 SIGNAL clinical trial indicate. Findings were presented at the virtual American Academy of Neurology...

huntingtonsdiseasenews.com

 

[ScottySkis]

About Huntington D is horrible I didn't write it but I agree 100%

What Is The Cruelest Disease on the Planet? I Say Huntington's Disease – Therese Crutcher-Marin

May is Huntington’s Disease Awareness Month As far as I’m concerned Huntington’s disease (HD) is the cruelest disease on the planet. John and I lost his three sisters, Lora, Marcia and Cindy from HD complications at ages 41, 49 and 54. Marcia and Cindy struggled with HD for 15 and 17 years...

theresecrutchermarin.com

 

[ScottySkis]

To persevere against neurological diseases such as Huntington’s and the aging we all face, I have learned that it is essential to develop meaning and purpose and perform mental exercise. In May 1997, just seventeen months after learning that my mother had HD, a doctor to whom I poured out my heart about her struggles and my own risk told me: just keep doing what you like to do until the disease hits. I have frequently reflected on that advice by imagining the simultaneous challenge and beauty encountered by a surfer riding a wave. “Just keep surfing through life!” I tell myself. During this, HD Awareness Month, we must recognize how the caregiving and financial burdens of HD frequently force affected families to relinquish their dreams. My wife Regina and I have focused on saving, leading us to take usually modest vacations. This year, though, we splurged a bit to celebrate our 30th wedding anniversary with a trip to Hawaii. We found Hawaii wondrous. At a luau we were called to the stage with other celebrating couples to slow dance to a Hawaiian love song. I was introduced to the story of the king of surfing, Honolulu native Duke Kahanamoku, also an Olympic swimming champion. I was intrigued by Kahanamoku. Back home, I sought to build new dimensions of meaning and purpose by exploring his life, joy in surfing, and culture. In Hawaii, Regina and I were frequently welcomed with “aloha,” a philosophy Kahanamoku worked to spread globally. He wrote: “In Hawaii we greet friends, loved ones or strangers with ALOHA, which means with love. ALOHA is the key word to the universal spirit of real hospitality, which made Hawaii renowned as the world’s center of understanding and fellowship.” That solidarity resonates with the fight for human well-being fundamental to the HD cause. In a time of global warming, political strife, and warfare, the world has much to learn from the wisdom of aloha. Read more in my latest blog article.

https://curehd.blogspot.com/2022/05/surfing-throug

 

[Harvey]

Friends...

I have been getting messages from our beloved @ScottySkis that I don't totally understand. I believe his Huntington's Disease has progressed (gotten worse) and that is why we haven't heard from him in a while.

He wants to create more awareness about the disease and asked me to post this link:

#LetsTalkAboutHD with Amy Abbott

tennessee.hdsa.org

He also wants to me continue to promote Plattekill, both here and in his Plattekill thread on Alpine Zone.

Say a prayer for Scotty.

I wish you all the best my man. You always have a kind word to share, and you're a positive force in this world.

 

[Campgottagopee]

Sending +++++++++++++vibes++++++++++++ to Scotty

 

[Tjf1967]

I was wondering. Scotty hang in there.

 

[Warp daddy]

Aw Man ,Scotty know that peeps care ,hang tough .

 

[Ripitz]

I have been wondering as well. Stay strong bro. Peace be with you.

 

[gorgonzola]

Prayers and +++Vibes brotha @ScottySkis, I think of you when eat delicious deli and Italian take out!