Recent content by ScottySkis

Happy Monday afternoon can you post this in HD thread when you get a chance #HSG2023 Session Highlight! Don't miss Neurocrine Biosciences' Medical Director, Dr. Klepitskaya, discuss the FDA's approval of valbenazine for the treatment of chorea at this year's Annual Meeting on Nov. 3rd...

Nice Huntingdon Disease music event close enough to for Hudson Valley friends and family. Tickets are live! https://www.championsforhd.org/benefitconcert {Harv}

It’s important that in everything we do, in every event we host, that we always remember the reason we are here. The reason we advocate, support, and have community is all due to our #HDheroes We hope by collecting and featuring these stories, that we can continue to inspire and remind...

Happy Monday bad HD and Kids and much worse than me, every one with this horrible fucken illness needs support Update on Adventures for Autumn

Great HD news: "Huge news today (In my opinion). The NIH (National Institute of Health) has awarded 22 million to a new initiative dubbed "Correction of Neurological Disease via Allele Specific Excision of Pathogenic Repeats”. One of the goals of this is to bring a CRISPR based therapeutic to...

{Admin}

{Editors Note: I am going to post these updates as Scotty from now on, with a little {Admin} at the bottom so you know it was me.}

Platty is hiring When I pass I fly over this amazing ski hill We're hiring! - some positions immediate hire (mechanics, lift mechanics & more). Lots of great opportunities, competitive wages. Details at https://plattekill.com/employment/ and online application too for winter jobs from...

"Hope you have great winter ski season and every one on the forums ski does too." (posted for Scotty by admin)

To persevere against neurological diseases such as Huntington’s and the aging we all face, I have learned that it is essential to develop meaning and purpose and perform mental exercise. In May 1997, just seventeen months after learning that my mother had HD, a doctor to whom I poured out my...

Just tried new brownie source from Facebook I know soon if I ate to much of it lol

About Huntington D is horrible I didn't write it but I agree 100% https://theresecrutchermarin.com/may-is-huntingtons-disease-awareness-month-5/

""The experimental therapy pepinemab can aid cognition in people with early Huntington’s disease who showed signs of cognitive impairment when they started treatment, new analyses from the Phase 2 SIGNAL clinical trial indicate...

Breakfast here was edibles that I got yesterday on April 20 in mail from Facebook market page some days are i get lucky yo lol

I got lucky my edibles that was supposed come on Friday came today I know in hour or so if good Hoppe